So imagine, you step into the doctors barely being able to walk, no co ordination , no eyesight , no feeling , unable to express yourself. Oh and did I mention only being 17..? This is my story.
I had been to many GP appointments where I was told my diagnosis was stress, psychological and possibly carpal tunnel. Through an emergency appointment with DR Phipp at Lakenham Surgery (my saviour) a thorough examination was carried out. He then asked my mother and me to wait in the waiting room. Can you just picture how nervous we were?? Being called back in he told us he feared it was Multiple Sclerosis and that I had to be admitted to hospital to the Norfolk and Norwich Hospital immediately.
Although most doctors would have left it there, he mentioned that there was a support group for young people with ms in Norwich called mustard soup – despite the circumstances I laughed at how funky the name was!! Cut long story short after various procedures with long names I began my treatment on Tysabri, a disease modifying drug. I remember asking the nurse for details of someone nice , with ms who I could turn to for support.
Little did I know that I would be contacting the founder of Mustard Soup who undergoes the same treatment as me! The first call to Kelly was long (not in a bad way) and hard to a certain extent to admit to myself that this was not a dream but actually was now reality. I can never repay her for the love , kindness and support she offered me, despite not knowing me nor what I look like. I honestly couldn’t say where I would be now without the support from Mustard Soup (all of you!!) but I can say that I would certainly not have finished my A levels let alone be preparing for university at UEA to study adult nursing. Thank you to my wonderful MS sister ”
Julia Schoppe, Relapsing Remitting MS